gerbo hat geschrieben:doesn't that leave you with the problem that you recommend a certain treatment, (and you recommend rahmouni a lot) which is very involved and physically and emotionally very difficult to cope with potentially, without knowing whether "it is worth it" / "makes a difference" etc etc.
First of all there are many studies, which come to the conclusion, that a minimum correction of 50% is necessary to ensure that there is no further progression. I guess we can agree that this is quite sure then.
Rahmouni provides this correction in most cases, so if you get used to your brace in a reasonable amount of time and wear it, it practically is an insurance against further progression. That alone is already worth it, since without brace there would be an enormous progression and in the end surgery. Alas, if the brace improves the curve or not matters little, the main goal is to avoid surgery.
Secondly, since I was a patient of Rahmouni with a brace that corrected from 58 degrees to 18 degrees, I know from my own experience, that while I was wearing my brace, there was absolutely no chance of any progression. When I took off my brace, I was still straight, up to 2 1/2 centimeter higher than I am now.
How would a progression be able to take place, if your spine never even gets remotely near to the initial degree of curvature. There I don't see any possibility.
And lastly, since I know the magnitude of the effect a well correcting brace of Rahmouni's can have and the quality difference to other braces which hardly correct at all, it seems no wonder that they don't achieve any correction. If they did with so little initial correction, I would have to be absolutely straight right now, given how much my brace corrected -
von nichts kommt nichts!
Well, for most of us it is quite an easy decision. Rahmouni is one of the best. You can't do anything wrong if you just take the best, that applies everywhere in life. If you are unsure, you just take what seems best to you.
gerbo hat geschrieben:which is very involved and physically and emotionally very difficult to cope with
And concerning this point of view, gerbo, I am a patient. I hardly ever regard things out of the eyes of third person like a parent or doctor, deciding over someone else.
I cannot imagine that anyone would want a low quality treatment if the risk of an unwanted surgery is involved. The moment you understand this, there are no physical or emotional problems anymore. It is the price you are glad to be able to pay.
I never had any problems of that sort, because I wanted that brace and I was so lucky that I got it. The majority of people who write here are teenage patients as well. So if they go to Rahmouni, it is there own decision.
what has happened to all those people which have been put on the list with their initial corrections?? Have they disappeared, have they written on the forum how they are doing or have they stopped the treatment, or did they get worse after all??
Well you have to read in the forum. There is a link to each person's profile, many of them have written how their story went on.
I am not intending to sound aggressive about it, but these are the question I will get when suggesting "lets take the plane and go to germany" for a rahmouni brace.
Well, unless your daughter has more than 50 or 60 degrees, I am not suggesting that you should go to Rahmouni. I would recommend Nahr in Berlin. Flights from London to Berlin are not so expensive, the braces in general a bit smaller than Rahmouni's. The only question is if your health security covers a brace from Germany. But Austrian and Swiss health insurers do, so they might.